Sorry for the delayed response…
I’m struggling mentally, emotionally and physically.
I’m still getting drained every 2 weeks and it helps.
I went to UM for the start of the transplant process and working my way through the medical disciplines for them to go into selection committee.
So far I have done full cardio work up. Cardiologist sees no reason she wouldn’t sign off on transplant.
This week I have social worker, nutritionist and transplant surgeon to meet with.
Unfortunately, reality is sinking in!
Four letters that hit like a freight train. E.S.L.D To see that finally on paper, wow!
This means transplant will be the only thing ultimately I can do to beat this. So making it through the committee and being listed is number one goal right now.
There is no time table where I’m at. It’s basically mitigating my condition and keeping stable enough to get to the procedure. This cycle could be months to years. So I’ll do everything in my power to do what’s needed to prolong my life.
So I’ll be around, it’s just when. As there are a lot more bad days than good ones.
I thank you all for keeping in your thoughts, I need all I can get.
Sent from my iPhone using Tapatalk