Why so low key?
21 - 40 of 115 Posts
Joined
·
11,541 Posts
I was back in the hospital as emergency Thursday-Sat.
They took another 8 liters out and that’s not good as I just had 8 taken out the Friday prior.
They say I am cleared for the Tips Procedure, but are not sure if they should put me on the transplant list now in case things don’t go as planned.
My MELD score has gone from 11-12 in March to 18 on Saturday. This range is from 6-40, higher you go the worse you are. So, I guess we can kinda see where this is heading of this is to be a measuring stick.
Trouble is in my area S Florida, they are not even getting offers of donor livers for scores under 24 or around 24.
Just trying to stay positive and do my best to get this sorted.
Thanks for asking.
Sent from my iPhone using Tapatalk
They took another 8 liters out and that’s not good as I just had 8 taken out the Friday prior.
They say I am cleared for the Tips Procedure, but are not sure if they should put me on the transplant list now in case things don’t go as planned.
My MELD score has gone from 11-12 in March to 18 on Saturday. This range is from 6-40, higher you go the worse you are. So, I guess we can kinda see where this is heading of this is to be a measuring stick.
Trouble is in my area S Florida, they are not even getting offers of donor livers for scores under 24 or around 24.
Just trying to stay positive and do my best to get this sorted.
Thanks for asking.
Sent from my iPhone using Tapatalk
Joined
·
11,541 Posts
Friday doc day… or, as I call it pin cushion day!
Met with University of Miami Transplant Institute as I will be moving my care there.
30 tubes of blood this morning or that’s where I stopped counting anyway.
Now on to Cleveland Clinic for my 2 week paracentesis.
Just maybe when I’m done I can sit pool side and get some sun for a Vitamin D recharge.
Staying positive… I can get back on the scooter soon.
Sent from my iPhone using Tapatalk
Met with University of Miami Transplant Institute as I will be moving my care there.
30 tubes of blood this morning or that’s where I stopped counting anyway.
Now on to Cleveland Clinic for my 2 week paracentesis.
Just maybe when I’m done I can sit pool side and get some sun for a Vitamin D recharge.
Staying positive… I can get back on the scooter soon.
Sent from my iPhone using Tapatalk
Joined
·
11,541 Posts
Sorry for the delayed response…
I’m struggling mentally, emotionally and physically.
I’m still getting drained every 2 weeks and it helps.
I went to UM for the start of the transplant process and working my way through the medical disciplines for them to go into selection committee.
So far I have done full cardio work up. Cardiologist sees no reason she wouldn’t sign off on transplant.
This week I have social worker, nutritionist and transplant surgeon to meet with.
Unfortunately, reality is sinking in!
Four letters that hit like a freight train. E.S.L.D To see that finally on paper, wow!
This means transplant will be the only thing ultimately I can do to beat this. So making it through the committee and being listed is number one goal right now.
There is no time table where I’m at. It’s basically mitigating my condition and keeping stable enough to get to the procedure. This cycle could be months to years. So I’ll do everything in my power to do what’s needed to prolong my life.
So I’ll be around, it’s just when. As there are a lot more bad days than good ones.
I thank you all for keeping in your thoughts, I need all I can get.
Much love,
Garth
Sent from my iPhone using Tapatalk
I’m struggling mentally, emotionally and physically.
I’m still getting drained every 2 weeks and it helps.
I went to UM for the start of the transplant process and working my way through the medical disciplines for them to go into selection committee.
So far I have done full cardio work up. Cardiologist sees no reason she wouldn’t sign off on transplant.
This week I have social worker, nutritionist and transplant surgeon to meet with.
Unfortunately, reality is sinking in!
Four letters that hit like a freight train. E.S.L.D To see that finally on paper, wow!
This means transplant will be the only thing ultimately I can do to beat this. So making it through the committee and being listed is number one goal right now.
There is no time table where I’m at. It’s basically mitigating my condition and keeping stable enough to get to the procedure. This cycle could be months to years. So I’ll do everything in my power to do what’s needed to prolong my life.
So I’ll be around, it’s just when. As there are a lot more bad days than good ones.
I thank you all for keeping in your thoughts, I need all I can get.
Much love,
Garth
Sent from my iPhone using Tapatalk
Joined
·
10,636 Posts
Prayers and positivity coming your way brother!
Joined
·
4,904 Posts
Haven't posted but you have been in my prayer's sir.
Joined
·
11,541 Posts
Things are moving….
Just left Jackson…
Went well, met with social worker, nutritionist and Transplant Doc.
Just had Pneumococcal and Hep A+B vaxs.
My case I am told will be presented tomorrow for transplant. I am also told I will have an answer by Monday with a Y/N and anything I may need to ”do” if I get a no that’s not for medically prohibitive reasons.
Moving forward… that’s what is important.
Sent from my iPhone using Tapatalk
Just left Jackson…
Went well, met with social worker, nutritionist and Transplant Doc.
Just had Pneumococcal and Hep A+B vaxs.
My case I am told will be presented tomorrow for transplant. I am also told I will have an answer by Monday with a Y/N and anything I may need to ”do” if I get a no that’s not for medically prohibitive reasons.
Moving forward… that’s what is important.
Sent from my iPhone using Tapatalk
Joined
·
7,668 Posts
knee mail sent garth. sounds like our father in heaven isn't ready to take you yet. hang in there the most difficult part is almost over. we anxiously await the good news.
Joined
·
19,921 Posts
good luck Garth hope thing get better for you
21 - 40 of 115 Posts
